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UsherNet.org > What is Usher-Syndrome > Usher Study by Mary Guest > Summary

Retinitis Pigmentosa

Genetics

Problems

Reaction of Friends

What to do

Planning of Future

Summary

Summary

It is necessary to improve treatment and services for people with Usher syndrome. This improvement will come only when professionals dealing with deaf people know about this condition, when we know how many people have it, when we stop looking at bits of people and attend to the whole and when we show a deeper concern for those who must live their lives deprived of much of their sensory input.

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