|Forschung Contra Blindheit - Initiative Usher-Syndrom e.V.|
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About The Charity
How you can help
Imagine what it is like to be blind...
You cannot see.
How do you communicate with other people?
How do you carry out your profession?
Just imagine how you would cope with these ordinary every day situations - perhaps that will make it easier for you to understand the problems an individual suffering from Usher-Syndrome faces every day.
A person affected by Usher-Syndrome is born either deaf or with hearing deficiency and will in the course of time experience progressive vision loss, in most cases to the point of blindness.
Due to the slowly progressive nature of the illness, Usher-Syndrome will usually be diagnosed at an age when the affected person has already made or is about to make important decisions with respect to career and family planning.
The diagnosis causes fear and confusion.
Apart from the difficulty of having to compensate for the loss of vital senses it also means having to cope with the considerable emotional impact of the illness.
Due to the dual impairment of the senses which most people would classify as the most important, Usher-Syndrome is an extremely serious and debilitating illness.
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|© Forschung Contra Blindheit - Initiative Usher-Syndrome
A charity registered in Germany, Magistrate Court, Hamburg, Germany, Reg. No. VR 14423